So it’s 7pm and Junior Mock still hasn’t been forced to sit up yet. I’m glad, because of course I’m dreading it, but I’m also anxious for them to just get it over with already.
He’s been pretty restful today, but pretty much when he’s awake, he’s miserable. I am trying to stay on top of the nurses to make sure they move his position frequently. Earlier today, he was crying and couldn’t be consoled with any medication whatsoever. We were all scratching our heads and worried about why he was still in pain when he’d already been given valium, morphine, and lortab. I asked that he be gently rolled over onto his other side, and when we got him shifted, it turned out that his catheter tube had been digging into his thigh, and had left a horrible red indentation. He fell asleep almost instantly after it was moved away.
This is what makes having a non-communicative boy the hardest. And it’s not even that he’s non-verbal – it’s that he has no use of his arms/hands. So, not being able to move a tube out from underneath himself is one thing, but even in every day life, I often wonder if he ever has itches he can’t scratch, or tickles in his nose he can’t rub out. It’s those little things, that you and I don’t even think about most of the time because instincts take over. But it’s those little things that I wonder about FOR Junior Mock. And like today, sometimes I just have to figure them out as I go.
Sleeping comfortably now and so handsome. I’m hoping for a peaceful night for him after they try sitting him up.
He is so lucky to have someone so loving and attentive. You are an amazing woman.
Rest well Junior Mock… and Mockarena, don’t forget to take care of yourself too.
The LORD will sustain him on his sickbed and restore him from his bed of illness. ~~ Psalm 41:3
You must be exhausted! As my Mom would always say in trying times, “This too shall pass”. Hugs
Keep on keepin on, Mama.
Just read your longer posts on Junior Mock’s surgery. Hoping hoping hoping that he is feeling better. xo
I can’t even imagine how hard it must be to watch your child in such pain. We’re still praying for him every night, and for all your family.
Mock!! did you see that??? LAURA ZIGMAN!!!!
Continuing to pray, Mock.
Mock, you are doing the best you can do with what you’ve got. NEVER think that you could or should do more or that you’re lacking in the maternal department because of what you think you should be doing. God only gives us trials that we can overcome with his help. While watching the pain of Junior Mock’s surgery may be your trial, an un-scratchable itch may be his. God will be with him as he struggles to overcome his obstacle. As his mother, it is your job to support him in his struggles, but not to struggle for him. That is how he becomes a man and a follower of Christ. Regardless of whether or not he fits the stereotype of the “typical man,” he is well on his way.
Sometimes just holding a hand or a foot, if that’s all you can hold, is enough. And we’re all holding your hand through this, Mockarena. Much love is being sent your’s and Junior Mock’s way. Please let him know!
I love that Laura Zigman is sending her support!
I cant imagine how hard all of this had been and what a toll its been taking on you and the family, but I’m sure its nice knowing such a literary mastermind is out there somehwere wishing you well, not to mention all of us non-famous MockDockers with you in our hearts and thoughts.
My stepmom’s first husband was a quadriplegic (sp?) and used a sip and puff machine. You might want to look into one.